Graduation Year
2023
Document Type
Capstone Project
Project Type
Qualitative Study
Degree Name
Master of Science in Occupational Therapy
Program
Occupational Therapy
Program Chair
Gina Tucker-Roghi, OTD. OTR/L, BCG
Faculty Advisor
Laura Greiss Hess, PhD, OTR/L
Abstract
The prevalence of pediatric strokes occurs at a higher rate than is publicly acknowledged, with hemorrhagic stroke accounting for nearly half of these occurrences (Lo, W.D., 2011). Children impacted by hemorrhagic stroke (HS) face functional, cognitive, and occupational limitations, directly impacting the overall quality of life and well-being in not only pediatric stroke survivors, but their families and caregivers as well (Bhopti et al., 2019). Although there is limited research investigating effects of hemorrhagic stroke on the child alone, little research has focused on family centered outcomes. This study aimed to learn more about the family perspectives, specifically familial and child occupations in the home, school and community through their own unique lived experiences, reflecting the many dynamic challenges and barriers they’ve experienced. The qualitative research explored the impacts which post pediatric HS (PHS) incidences have on family-related occupations, hospital experiences of families, and access to support for the affected child within the community. Through open-coding analysis of parent interviews, common themes were identified to gain awareness into the realities of raising a child post HS and the impact on daily occupations. These themes included the gap in services that are currently provided to families once transitioning back home after acute care, school services that are offered and beneficial in supporting a child’s return to school, and the stigma surrounding PHS.
Included in
Neurology Commons, Occupational Therapy Commons, Other Mental and Social Health Commons, Pediatrics Commons, Social Work Commons, Trauma Commons